Update/Goals for the blog

So apparently its been quite a while since I blogged.  Woops!

I don't even know where to start if I am going to tell you how my life has been...It's been a whirlwind, that's for sure.  I was sick and in the ER twice back in May/June and I think that was the last time I wrote.  Fortunately, it was not a CF kind of sick, it was more of my endometriosis flaring up real bad. Unfortunately, I was in agonizing pain for quite some time, was unable to eat much and lost about 10 pounds.  I ended up in the hospital for 10 days total because they couldn't figure out what exactly was wrong. And then during the second week they found a "pocket" of infection near my bladder.  My theory is that I had a burst cyst that got infected along with the endo and some inflammation in my intestine. But anyway, that's all in the past now.  During that time, we put our TTC efforts on hold and so far we have not gone back.  As much as I have always wanted babies, after that scare it really got us thinking that we also want to travel more. We don't know if/when we will go back to the fertility specialist.

A week after I finally left the hospital, we had planned on going away for my husbands wheelchair soccer tournament in Indiana (a two+ hour flight from home) and we did go.  Again something I was very unsure of doing.  I had a lot of bottled up anxiety.  On the one hand, I didn't want to get all the way to Indiana and be in agonizing pain again...but on the other I didn't want to stay home alone for almost a week and risk being in pain.  So we decided at the last minute that I'd still go and it was great!  Even though I just sat around on bleachers watching soccer most of the the time, it was very nice to just get away from everything.  To go somewhere I'd never been, to see something my parents and sister have never seen...despite there not being much to do in "The Middle" of the country.  We were able to relax and let go of everything that had happened back home.  AND we realized how EASY it was to travel.  You see...we travelled with his whole team, 7 men and one woman in wheelchairs, plus the significant others/or helpers.  It was a HUGE process and trying to get all of them (and the wheelchairs) on the plane wasn't easy, but it went far smoother than we could have imagined.  All my husband kept saying was "imagine how easy it would be if it was just us."  

SO...when we got home we started talking about our trip and going somewhere, just the two of us. And, guess what guys....I finally convinced him to take me to DISNEY!!!  We leave in about 5 weeks and I am already like a kid in a candy store, bouncing off the walls excited!!  And I have been since we booked it.  I work for a travel agency and I have been telling my husband FOREVER that Disney is the perfect place for people in wheelchairs.  I mean, you book the trip and its all taken care of. They do everything.  They pick us up at the airport in Orlando and shuttle us to our resort.  They even pick up our luggage!  I mean, really?!  Can you get better than that?  I know when I land at an airport, the last thing I want to do is wait for my baggage to come off the conveyor belt.  Granted, with CF most of my luggage (medication, Vest, nebulizer) will be in my carryon and I'll still be responsible for that...at least I won't have to worry about our additional 1-2 bags with our clothes. Seriously excited for this.  THEN, once you're on Disney property you don't even need to rent a car. There are shuttles and the monorail all over to take you to all of the parks, other resorts and Disney Springs (the old Downtown Disney shopping/restaurant area).  And I know he won't be able to ride all the rides, but everything else is wheelchair accessible.  Serious bonus in my book!  *unlike at a beachy resort on an island outside of the US, that may have stairs and hills and whatnot*  Not to mention, we will be there during the Food and Wine Fest at Epcot!  So it will be a little more "adult" than just going for the princesses.  ;) I know he'll like Epcot.  I was there 21 years ago next month, he's never been.  We will take one day to do Universal too.  I am PUMPED to see Harry Potter land.  oh my gosh.  From what I hear, it looks JUST like the movies.  We'll probably have to take a cab there or find some sort of shuttle.  I am not worried about that.  I just can't wait to go.  And the weather should be perfect.  Everyone is telling me how great a time of year it will be.  

So as for this blog...I've been thinking of what I want it to be.  I want to be more involved in the blogging world, I want to spend more time writing on here.  I just don't know what I'd write about every time.  LOL.  So I am going to try a be a better participant.  I will try and blog more often, maybe come up with some weekly or monthly theme posts that will make sure I get on here.  If I set a definite post for a definite date, then I'd find time.  My computer time is usually while I am nebbing/vesting and lately I've been crocheting or watching make up videos while nebbing/vesting.  Oh yea, I also joined on as a Younique make up presenter, so if you have any make up questions or want to check out the line, leave me a comment.  I really love the products that I have tried so far and can't wait to try more.  Having this little side business has kept my mind off of some other things going on (the not TTC, the health issues) and has given me some thing to work towards and look forward to.  And as for the crochet stuff, I have lots of friends and relatives that are expecting soon so I've been kept pretty busy with that.  And with some random orders here and there.  I love being able to create a gorgeous keepsake for someone...especially babies.  Keep an eye out for some posts on my upcoming projects! I have some gorgeous WIP's (works in progress) that are on my (crochet) hooks right now.  Yes I typically have several projects going on at once and then several more in my brain waiting to be started.  LOL.

So for now, that's really all. If you have any ideas on things for me to write about, things you want to know more about, CF life, wheelchair spouse life...please let me know.  And I will see what I can come up with!  Have a lovely day!

Back to the Grind

Apparently its been a while since I posted!  Wooops!

Last time I posted that I had an awful week as far as exercise goes.  Well the last two weeks have been even worse…but for good reason.  Husband and I went on VACATION!!  We took a cruise to Bermuda.  It was fantastic.  There was only one day (the very first day at sea) that had bad weather, and bad sea sickness as a matter of fact.  It was lovely.  Actually, the seasickness wasn't too bad, it could have been worse, but I did definitely feel the 7-12 foot wave swells and just had to kind of lay low that day.

I think with the whole build up  to the vacation and then the actual vacation I was so exhausted/relaxed/happy that I didn't really feel like exercising.  I did not want to use the ship's gym because it probably rarely gets cleaned and the PT I've been working with was totally ok with that.  My plan was to maybe do some stuff in our cabin the week we were away, but that didn't happen.  The whole week prior to the cruise was spent getting ready, cleaning the house, doing all the laundry and packing…and then of course I couldn't contain my excitement.  So by the time we got on the cruise I was ready to chill and do nothing.  And relax.  Sit by the pool, sip a few drinks, eat a lot of food.  Honestly, I didn't feel like doing much else.  I don't know if this is a CF thing (as far as the exhaustion issues) or just a normal vacation reaction.  I don't necessarily regret the cruise, we are already talking about when we can go on another, but I wish we had participated more.  Gone to more shows, played more games.  But then again…we went on this vacation to sit in the sun and relax and eat good food (there is SOOOOOOO much food on these ships, OMG).  By the end of the day we were wiped out just from that, so we would go back to our cabin and sit on the patio enjoying the sounds, sights and smells of the ocean.  Or we would walk around on the top deck of the ship and enjoy the sunset.

But I need to get back to the gym.  That will happen today.  I promise.  After I go to the craft store, a very dangerous place if you ask me.  ;) I was going to go to the gym over the weekend (we came back early Friday morning), but again, I was still so exhausted and had more chores that needed doing.  I don't want to make excuses, but I need to make sure my body gets enough rest so that I don't end up getting sicker than I am.  I did come down with a cold on the cruise which is not surprising to me. There are 3,000 people aboard the ship and we did *gasp* eat the buffet several times for breakfast and lunch.  I tend to shy away from buffets because of the germs and dirty little hands that reach over the counter, but I couldn't really help it.  The buffet (and all other restaurants on the ship) were delicious and when you are sitting out by the pool its much easier to run into the buffet for a quick bite than to go back to your room, get dressed, and go to a sit down restaurant.  So anyway, I don't think the cold has gone to my lungs, but there is still a ton of drainage from my sinuses and a terrible post nasal drip type cough.  I have to call the clinic for a refill on something today, so I will run it by them on how to proceed with the symptoms.  Honestly, I think once I start exercising again it will get better.

I mentioned earlier that I have been meeting with a PT at my CF clinic.  I will blog in more detail the things we've been going over because I think it deserves its own post.  But if you have the opportunity to meet with a PT that specializes in CF Care, I'd HIGHLY recommend it.  He has been fantastic and really knows his stuff.  We are very lucky at my hospital to have him!

I will leave you with some of my favorite pictures from our week away.  And yes there will be dolphins.  :) They swam alongside our boat for a while on our very last day at sea!  Pretty exciting!

This was our last sunset in the port in Bermuda. We had one more full day (we left at 5 pm, so we missed that sunset).  *sigh* It was just stunningly gorgeous!

The view from our room while we were cruising.  I seriously could sit and watch and listen to the ocean all day.  I am definitely an ocean lover.

Pulling into port.  I believe we circled the island so that we could get some pics. It looks stormy in this shot, but it actually turned out to be a really nice day later on.  We docked around 11 am and I think by 1 pm it was sunny and warm.

We went on a wheelchair accessible bus tour.  Unfortunately, we didn't really have time to make many stops, but the tour was definitely worthwhile.  We got to learn a lot about the architecture, history and the beautiful beaches.  This beach was also down a large hill, so would have been inaccessible for a wheelchair.  There was a small accessible beach near the dock that we went to one day also.

Eeeeeekkk!!!  <3 <3 <3  

A gorgeous sunrise from our balcony.  As you can see, the seas were very calm when this shot was taken.